Pediatric Palliative Care
In this section, we review the difficult topic of caring for children with serious, life-limiting illness. This is a broad and important aspect of palliative care. It requires much more time than we have this month, but hopefully this will become the beginning of the discussion. I hope that this month we review some of the key areas that truly are unique to pediatrics.
As we move forwards in LGLC, I hope that our discussions will start to include pediatric cases and discussions in the various content areas as well.
Thanks and a special welcome to our expert faculty: Scot Bateman and Naheed Usmani
Key content areas:
As we move forwards in LGLC, I hope that our discussions will start to include pediatric cases and discussions in the various content areas as well.
Thanks and a special welcome to our expert faculty: Scot Bateman and Naheed Usmani
Key content areas:
- Treating pain in infants and children: challenges of assessment and management
- Decision-making and surrogate decision-making
- Bereavement in children and families
Online resources
WHO resources in Pedi-Pal education for professionals
IPPC Curriculum
Children’s Project on Palliative/Hospice Services (ChiPPS)
Cancer Pain Management in Children
Pain Treatments in Pediatrics
Summer Camp for seriously ill children: Hole in the Wall Gang Camp - Dr. Space (Medical Director)
Pallimed Special: Bereavement on Sesame Street - The Death of Mr. Hooper
Sesame Street Video: The discussion starts around minute 7.
When Families Grieve - Sesame Street and Katie Couric - A great resource for families and children
Comfort Zone Camp: A camp for grieving children
IPPC Curriculum
Children’s Project on Palliative/Hospice Services (ChiPPS)
Cancer Pain Management in Children
Pain Treatments in Pediatrics
Summer Camp for seriously ill children: Hole in the Wall Gang Camp - Dr. Space (Medical Director)
Pallimed Special: Bereavement on Sesame Street - The Death of Mr. Hooper
Sesame Street Video: The discussion starts around minute 7.
When Families Grieve - Sesame Street and Katie Couric - A great resource for families and children
Comfort Zone Camp: A camp for grieving children
Articles
- Palliative Care for Infants, Children, Adolescents, and Their Families Bruce P. Himelstein. Journal of Palliative Medicine. February 2006, 9(1): 163-181. doi:10.1089/jpm.2006.9.163
- Pediatric Palliative Care D. N. Korones. (2007) Pediatrics in Review 28:8, e46-e56
- Understanding of Prognosis Among Parents of Children Who Died of Cancer: Impact on Treatment Goals and Integration of Palliative Care Joanne Wolfe, MD, MPH; Neil Klar, PhD; Holcombe E. Grier, MD; Janet Duncan, RN, MS; Susanne Salem-Schatz, ScD; Ezekiel J. Emanuel, MD, PhD; Jane C. Weeks, MD, MSc JAMA. 2000;284:2469-2475.
- Pediatric Palliative Care — NEJM Bruce P. Himelstein, M.D., Joanne M. Hilden, M.D., Ann Morstad Boldt, M.S., and David Weissman, M.D. N Engl J Med 2004; 350:1752-1762
- Alterations in End-of-Life Support in the Pediatric Intensive Care Unit K. Jane Lee, Kelly Tieves and Matthew C. Scanlon Pediatrics 2010;126;e859-e864; originally published online Sep 6, 2010; DOI: 10.1542/peds.2010-0420
- Pediatric Palliative Care: Use of Opioids for the Management of Pain. B Zernikov et al. Pediatric Drugs: 1 April 2009 - Volume 11 - Issue 2 - pp 129-151 doi: 10.2165/00148581-200911020-00004
- Introduction of a Pediatric Palliative Care Curriculum for Pediatric Residents Joshua D. Schiffman, Lisa J. Chamberlain, Laura Palmer, Nancy Contro, Barbara Sourkes, Theodore C. Sectish. (2008) Journal of Palliative Medicine 11:2, 164-170
- Relational Learning in Pediatric Palliative Care: Transformative Education and the Culture of Medicine Browning DM and Solomon MZ Volume 15, Issue 3, Pages 795-815 (July 2006)
- Spinal muscular atrophy−type I M K M Hardart and R D Truog Arch Dis Child 2003 88: 848-850 doi: 10.1136/adc.88.10.848
- Interdisciplinary Interventions To Improve Pediatric Palliative Care and Reduce Health Care Professional Suffering Cynda Hylton Rushton, Elizabeth Reder, Barbara Hall, Katherine Comello, Deborah E. Sellers, Nancy Hutton. Journal of Palliative Medicine. August 2006, 9(4): 922-933. doi:10.1089/jpm.2006.9.922.
- When Clinicians and a Parent Disagree on the Extent of Medical Care. Carol C. Weitzman, Sarah Schlegel, Nancy Murphy, Armand H. Matheny Antommaria, Jeffrey P. Brosco, Martin T. Stein. Journal of Developmental & Behavioral Pediatrics:April 2010 - Volume 31 - Issue 3 - pp S92-S95doi: 10.1097/DBP.0b013e3181d82f16
- Pediatric Palliative, End-of-Life, and Bereavement Care Volume 52, Issue 4, Pages 1029-1046 (August 2005) Tammy Kang, MDa, K. Sarah Hoehn, MD, MBEb, Daniel J. Licht, MDa, Oscar Henry Mayer, MDa, Gina Santucci, RN, BSNc, Jean Marie Carroll, RN, BSNc, Carolyn M. Long, MSWd, Malinda Ann Hill, MAd, Jennifer Lemisch, ATR, BC, LPCe, Mary T. Rourke, PhDa, Chris Feudtner, MD, PhD, MPH
- Matters of Spirituality at the End of Life in the Pediatric Intensive Care Unit -- Robinson et al. 118 (3): e719 -- Pediatrics Vol. 118 No. 3 September 2006, pp. e719-e729 (doi:10.1542/peds.2005-2298)
- Peace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer -- Arch Pediatr Adolesc Med Jennifer W. Mack, MD, MPH; Joanne Wolfe, MD, MPH; E. Francis Cook, ScD; Holcombe E. Grier, MD; Paul D. Cleary, PhD; Jane C. Weeks, MD, MSc Arch Pediatr Adolesc Med. 2009;163(6):519-524.
- Companionship, Control, and Compassion: A Social Work Perspective on the Needs of Children with Cancer and their Families at the End of Life Barbara L. Jones. Journal of Palliative Medicine. June 2006, 9(3): 774-788. doi:10.1089/jpm.2006.9.774.